The BioDQ Project’s Research Study

 


Informed Consent

 

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Protocol #2007-U-0304: Comparative Study of Automated and Human-based Quality Assessments over Genomic Data


 

 

** Please read this consent document carefully before you decide to participate in this study. **

 

 

Purpose of the research study

 

The purpose of this study is to collect expert’s assessments about the quality of genomic records. This will be used to evaluate the validity and usability of a quality estimation model for genomics data developed by the authors of this study.

 

 

Eligibility of participants

 

Participants must be 20 years old or older, and should be Ph.D. students, Post-docs, Professors, or Researchers from the University of Florida (preferably) with background in areas related to Biology or Genomics, and experience using genomics databases, particularly NCBI databases.

 

 

What you will be asked to do in the study

 

First, you will be asked to choose a total of 24 records from NCBI’s nucleotide or protein databases, divided in two sets as follows.  The first set should contain 12 records whose quality you consider to be “Good” (above average). The second set should contain 12 records whose quality you consider to be “Poor” (below average). You should provide the Accession Numbers of the records you chose (do not copy and paste the actual record contents!).

Second, you will be asked to answer a few questions regarding the criteria you use for evaluating the quality of genomics records, the relative quality of different databases from NCBI (to the extend of your knowledge), and the suitability of quality assessment factors in the context of genomics.

 

 

Time required

 

Estimated time: 2 hours.

 

 

Risks and Benefits

 

There are no risks for the participants. Potentially, participants (and the general scientific community) will benefit from an automated quality assessment tool for biological data, which can help them in their research.

 

 

Compensation

 

Each participant will be paid $100.00 compensation.

 

 

Confidentiality

 

The identity of the participants will be kept confidential to the extent provided by law. Each participant will be assigned an ID which will be used for data analysis purposes instead of their name.

 

 

Voluntary participation

 

Participation in this study is completely voluntary.

 

 

Whom to contact if you have questions about the study?

 

Alexandra Martinez, Research Assistant

Department of Computer and Information Science and Engineering, CSE Building Room E301,
University of Florida - P.O. Box 116120 Gainesville, FL  32611.

 

Sanjay Ranka, Professor

Department of Computer and Information Science and Engineering, CSE Building Room E301,
University of Florida - P.O. Box 116120 Gainesville, FL  32611.

 

 

Whom to contact about your rights as a research participant in the study?

 

UFIRB Office, Box 112250, University of Florida, Gainesville, FL 32611-2250; ph 392-0433.

 

 

Agreement

 

I have read the procedure described above, and I voluntarily agree to participate in the study.